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More support groups and information

Paediatric epilepsy nurse service

Offers help, support and information on all aspects of epilepsy to families and carers.

Paediatric Epilepsy Department (QC261), Hydebrook House, Welwyn Garden City AL7 4HX

01438 288382
paediatricepilepsyservice.enh-tr@nhs.net

Parent Network support and learning groups

Bringing parents together by offering support and learning for parents caring for children and young people with any special education need, disability or condition. Offering support, signposting, information and focussed learning topics and access to specialist workshops as well as training for parents. Parent Network support & learning groups are run by Francine and Lesley with over 20 years of personal and professional experience. All Parent Networks are free for parents and there is no need to book, just pop in.

www.familiesinfocus.co.uk has more information and details of parent courses

Email info@familiesinfocus.co.uk  or call Lesley or Francine on 01442 219720

Closed facebook group: https://www.facebook.com/groups/184975381651870/

 

 SPACE

A support group for parent/carers of children and young people with Autistic Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD) and related conditions. Meets seven times a month in term time. Meetings are held in Bishop's Stortford, Buntingford, CheshuntHatfield, Hertford, Hoddesdon, Ware and Welwyn


Please visit http://www.spaceherts.org.uk for contact details and dates of meetings.

 

East Herts and area FASD Support Network

Provides support for families with children with a Foetal Alcohol Spectrum Disorder. Support groups meet every month at Chauncy School in Ware. We have an FASD Club providing childcare. 
Covers most of Hertfordshire and West Essex.

Please visit https://ehertsfasd.wordpress.com for more information

PHAB

PHAB stands for (PH) Physically Disabled, (AB) Able Bodied. Many members have different disabilities, but many of their siblings don't have a physical problem - our aim is to allow everyone to be involved. This helps young people learn about other disabilities and siblings don't feel they are always secondary to the disabled child.

PHAB organises school holiday activities 

 

Helpline:    020 8667 9443
Email:        info@phab.org.uk 
Web:         www.phab.org.uk

Carers in Hertfordshire

Support and information for all unpaid family carers and parent carers

01992 586969
contact@carersinhers.org.ukwww.carersinherts.org.uk

Family Lives

Free confidential helpline for advice, information and support on any aspect of parenting and family life on 0808 800 2222
Monday - Friday 9am - 9pm
Saturday - Sunday 10am - 3pm

www.familylives.org.uk

Aspergers4Herts

Supports children, adults and family members affected by Aspergers Syndrome living in Hertfordshire

Here is the link www.aspergers4herts.org/news/ to their newsletter

ADD-Vance

Support and information for those involved with children who are affected by Autistic Spectrum Disorder (ASD) or (ADHD)

Call    01727 833963
Email  herts@add-vance.org
www.add-vance.org

KIDS East HUB and
KIDS West HUB

Information and support services for parents and carers of disabled children and young people across Hertfordshire

KIDS West HUB – 01923 676549
hub.herts@kids.org.uk

Watford Mencap

A range of services for people with a learning disability, as well as their parents and carers

www.watfordmencap.org.uk/

Sibs

For brothers and sisters of disabled children and adults

www.sibs.org.uk

 

Money Advice Unit

For advice on benefits

www.hertfordshire.gov.uk/benefits
01438 737555

Up on Downs

Hertfordshire Down's Syndrome support group. Up on Downs is a parent run organisation which supports families of children with Down's Syndrome. Visit the website for details of events and news

enquiries.nhdowns@yahoo.co.uk

www.upondowns.com

Phoenix Group for Deaf Children

A charity that works with children and young people up to the age of 25 who have a hearing impairment

www.phoenixgroup.org.uk

PO Box 283
Letchworth Garden City
SG6 3EG

01462 743744

Spectrum Girls

Social group for high functioning autistic/aspergers’ girls of all ages

spectrumgirls@sky.com

Hertfordshire Dyslexia Association

Information, support and advice. Also training and support meetings

Telephone 01727 867399
email michael.paterson@tiscali.co.uk
Website hertsdyslexia.co.uk/

Dyspraxia Foundation

Advice, information and support

www.dyspraxiafoundation.org.uk/

Helpline: 01462 454 986 (10 am - 1 pm)
Mon - Fri

National Association for Epilepsy

Information, confidential helpline, written resources and emotional support

www.epilepsynse.org.uk

01494 601400

Young Epilepsy

Information and support for parents and carers of children and young people affected by epilepsy

Helpline: 01342 831342
Email: helpline@youngepilepsy.org.uk
Web: www.ncype.org.uk

ROSHNI Asian Mothers Support Group

Support for Asian mothers who have children with special needs in Watford and Three Rivers area

matnadeem@hotmail.com

Maureen Mills 01923 470600

Special Needs Parent Support Tring

Support for parents of children with SEN in mainstream schools in Tring and district

www.snpst.org.uk

01442 824462

Hope for Autism

Support for parents and carers of children with Autism and Aspergers Syndrome

Meets second Tuesday each month in term time
Fleetville Junior School, Hatfield Road, St Albans
AL1 4LW

Specific enquiries about the group -
Tel:  Linda Faupel  01442 219981
Email: HopeForAutismWH@yahoo.co.uk
Web: www.hopeforautism.org
Challenging Behaviour Foundation

A charity specialising in severe learning disabilities and behaviour described as challenging. Works with families and professionals supporting children and adults across the UK

http://www.challengingbehaviour.org.uk/
Email: support@thecbf/org.uk
Telephone 01634 8381739

 

Watford coffee mornings

Parents and carers of children and adults with autistic spectrum disorders are invited to meet at the Cafe Nero, Watford High Street, from 10am-12 noon

For more information please email jnputcha@hotmail.com

Swan UK

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions

http://www.geneticalliance.org.uk/

SWAN@geneticalliance.org.uk

Genetic Alliance UK
Unit 4D Leroy House
436 Essex Road
London
N1 3QP

020 7704 3141

YoungMinds

YoungMinds is committed to improving the emotional wellbeing and mental health of children and young people

Parents' helpline 0808 802 5544

www.youngminds.org.uk

Accessibility Guide

The Accessibility Guide has been updated

http://www.accessibleguide.co.uk/the-guide.html

Keys for disabled toilets

Disabled toilet keys (sometimes called Radar keys) can be bought from

Disabled toilet keys (sometimes called RADAR keys) can be bought online from Age UK – they cost under £2.50.

Buy a disabled toilet key from Age UK

SPOCAN

(Supporting Parents Of Children with Additional Needs)

A support group run by parents, for parents and carers, professionals or anybody with experience or interest in living or working with children/young people who themselves live with conditions (diagnosed or not) such as Autism, Attention Deficit Hyperactivity Disorder (ADHD), Attention Deficit Disorder (ADD), Dyspraxia, Dyslexia, Oppositional Defiance Disorder (ODD) as well as others

Contact: 07737 335289
info.spocan@gmail.com 

www.spocan.org

First Wednesday of the month (excluding August)    6.30pm – 9pm
Churchfield Primary School, Cheshunt Wash, Cheshunt EN8 0LU

Last Friday of the month (term time) 1.30pm – 3pm
Hurst Drive Primary School, Hurst Drive, Waltham Cross EN8 8DH

Tourettes Action

Tourettes Action works in England, Wales and Northern Ireland and is a support and research charity for people with Tourette Syndrome and their families. It aims to help people with TS to receive the practical support and social acceptance they need to help them live their lives to the full

www.tourettes-action.org.uk

Regional Development Coordinator, South-East
07725 819880

One stop parenting directory

The directory allows parents, carers and professionals to view parenting courses either by district or county wide. Other benefits will allow parents and carers to search the directory via keywords, see a map of provision, view expected outcomes of courses, see if crèche provision is available, any costs and the ability to add courses to a shortlist

The directory is available at www.hertfordshire.gov.uk/parentingsupport If you would like to advertise your parenting course in the directory or have any comments or questions please contact fsc.team@hertfordshire,gov.uk

Contact

Information, advice and support for families of disabled children

www.cafamily.org.uk

More information at www.hertfordshire.gov.uk/hand

There is more information on the support available for families on the Local Offer pages of Hertfordshire's website www.hertfordshire.gov.uk/sendlocaloffer

The KIDS HUBs are also an excellent source of information; you can contact them at West HUB - 01923 676549 and East HUB - 01992 504013 and www.KIDS.ORG.UK/hub

 

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